About Cystic Fibrosis

The Importance of Participating in Cystic Fibrosis Research

The condition that we now know as cystic fibrosis (CF) first came to the attention of medical experts in the 1930s. Not a lot is known about cystic fibrosis back then, but with constant research throughout the years, a base of knowledge has been built, and it led to a better understanding of the disease. With continuous research, scientists may be able to find a cure for this genetic disorder in the future.

The key to getting good results from any research or study on cystic fibrosis, however, relies largely on cooperation and participation. Scientists in this particular field of medicine need to conduct studies needed to gather more information about this disorder.

But cooperation is not limited to scientists alone. Patients need to join test groups in clinical trials that will enable the development of new drugs and new ways of managing the disease. People who are not affected with the disease but have the means to aid the research financially should also donate what they can to further the cause of finding a cure to the ailment.

Why Participate in Cystic Fibrosis Research?

Why do people need to lend their efforts towards cystic fibrosis research? The reasons are simple but vital.

  1. It is only through research that we can gain more knowledge and a better understanding of the disease. Through research, we know more about the causes of CF, how the disease works and how it affects people.
  2. Research provides the means to discover better ways in treating the condition. Only a number of medications and treatments specifically targeting cystic fibrosis is available on the market these days. These medications and treatments can only help in managing the symptoms. Maybe more ways of dealing with the disease will emerge later through research.
  3. In the future, continuous research may pave the way towards finding a cure. Right now, cystic fibrosis is considered treatable, but not curable. Continuous and extensive research can reverse this.

Developments in Cystic Fibrosis Research

A lot of information has been uncovered by scientists regarding cystic fibrosis in the last fifty or so years. Some of the major developments in this field of study include the discovery of the gene behind the disease and the creation of drugs designed to manage the symptoms of the disease.

In 1989, it was discovered that the mutation of the gene called cystic fibrosis trans-membrane conductance regulator is the cause behind cystic fibrosis. Through this discovery, scientists have developed a treatment that they have called “gene therapy” to fight the disease right at the source. Clinical trials for gene therapy began in 1993.

In 1994, scientists have developed the first drug specifically meant for use of people suffering from CF. This drug, called Pulmozyne, makes the mucus much thinner.

In 2005, researchers have seen an increase in the median survival rate of people with cystic fibrosis. On the average, people with cystic fibrosis can now live up to 37 years.

Only through constant research on cystic fibrosis were these developments possible. Hopefully scientists will find a cure for the disease in the near future.

Disclaimer: This website provides general information about cystic fibrosis and in no means should be taken as a medical or health advice. Please consult your doctor before acting on any of its information.