About Cystic Fibrosis

Coping Through Life with Cystic Fibrosis

Over the decades, most children suffering from cystic fibrosis would die before reaching their teenage years. Because of continuous research studies and medical advances, life expectancy of patients with CF has dramatically improved. People living with cystic fibrosis now reach mid-adulthood. Medical intervention and management of respiratory complications and malnutrition has allowed many patients to survive longer. Though the cure for cystic fibrosis is not yet available, researchers are finding ways to further improve the quality of life of CF sufferers.

Getting By Life with Cystic Fibrosis

Support from parents, relatives and friends are very important for people living with cystic fibrosis. This condition, however, should not limit affected persons to live their lives to the fullest. With proper education and care, life with cystic fibrosis need not be too overwhelming despite the big responsibilities and sacrifices parents and patients would be facing. Parents also need to work with and inform teachers at school about their kid’s condition. This would help ensure that affected ones can get additional support even at school. Staying healthy as possible should be the long-term focus of parents and patients. These important regimens would include:

First of all, consistently following the doctor’s treatment instructions.

Parents can look for CF Foundation-accredited care centers that can help them develop specific individual treatment plans that include administration of antibiotics and support medications, chest therapy sessions and high-fat and high calorie diet plans. Partnering with their CF care center team can aid in slowing down the progression of the disease. Schedule and establish routines throughout the day and be diligent in following treatment routines.

Good nutrition
This is an important factor for you are living with cystic fibrosis to stay healthy. Pancreatic enzyme supplements combined with vitamins and high-calorie and high-fat diet are a must for patients. Parents can make diet plans to ensure that their kids still get the right amount of nutrients that their kids would need for their condition.

Many people living with cystic fibrosis can still lead active lifestyles. Of course doctors advice and coordination with CF Foundation centers in major medical centers is needed. Exercise can help improve a patient’s overall physical condition.

Limit contact with identified germ sources
Patients with CF need to practice good hygiene in life through hand-washing using soap and water or hand gels to keep them from catching germs and reduce chances of infection. They should also avoid unnecessary contact with people who have colds or contagious diseases, and use a tissue when coughing or sneezing.

Have yearly flu shots or vaccinations
People with lung infections can easily catch and develop more serious types of flu. Flu vaccinations can help sufferers avoid getting most prevalent strains. They can get flu shots at major care centers and flu clinics.

Increased fluid intake
Fluid is important to have a balance diet and hydration. CF patients lose extra salt and water when sweating, thus increasing the possibility of dehydration especially during hot months. Increasing water intake can help maintain fluid balance. Milk is also good for people living with cystic fibrosis because it provides much needed calories and protein.

Avoid smoking and tobacco
Sick lungs are sensitive and environmental factors like second-hand smoking can be harmful to sufferers from the disease. Of course, smoking is never advisable as this could compromise respiratory health and capacity.

Opt for yearly examination for diabetes
Living with cystic fibrosis means that on has an increasing risk of developing diabetes as they get older. This is often the result of scarring in the pancreas, which is the organ that produces insulin. This event sometimes prevents insulin from getting into the blood and thus leads to diabetes. Keeping sugar levels in check through annual medical check-ups are very important.

Disclaimer: This website provides general information about cystic fibrosis and in no means should be taken as a medical or health advice. Please consult your doctor before acting on any of its information.